Why see the specialist? My vision is an example
When I was a toddler, my parents took me to the Tun Hussein Onn National Eye Hospital to find out what’s wrong with me after I asked my mom if everyone saw with only an eye the way I did. … Continue reading →
Preparing to consult the experts
I have been making arrangements to consult doctors and possibly undergo medical examinations as well as treatments at the NF2 Clinic at Massachusetts General Hospital-Harvard Medical School. The process involved registering me as an MGH patient, registering with the International … Continue reading →
Harvard, Harvard, may I come?
Upon my request, HEI doctors are now in the process of refering me to Harvard Medical School’s NF2 Clinic in Boston, Massachusetts for a second opinion. Dr. Adelyne, who is Dr. Lekovic’s assistant, is contacting the nurse at Harvard to … Continue reading →
There is a more important issue than money
I have not been jotting down every small turns in my quest to find out the cause of my symptoms the past two weeks because everything is still tentative. I was waiting for my L.A. neurosurgeon to come back from … Continue reading →
The radiology report and my concern
I have finally bought a new scanner/printer/copier to replace the old one which broke on me a couple of months ago. With the new replacement HP deskjet, I could finally scan the 19th December 2011 radiology report and upload it … Continue reading →
Sea cucumber and spirulina soap
Here is something that you have use for everyday – a special kind of soap that is enriched with high collagen, vitamin and minerals from the sea cucumber and spirulina. It makes your skin smooth and is suitable for all … Continue reading →
A morning revelation
My brain hurt again this morning, the way it hurt me on 16th December 2011 which led me to visit the emergency room the following Monday. When it hurt me again today, the location reminded me of my right lateral … Continue reading →
What the year 2012 means to me
It’s finally the year 2012 – the year that many anticipated this world to end. But for me, 2012 is the beginning of a new phase in life. Making my 1st book, “I’m not sick, just a bit unwell” available … Continue reading →
Last three Ambigram XXL in brown color
I found three pieces of Ambigram t-shirts in XXL size and in brown color today. I thought that I didn’t have them anymore until these three pieces surfaced. Would anyone like to have one of them? They are the last … Continue reading →
For a helpful doctor
A very supportive and helpful anesthetic medical officer of a local public hospital wants to find ways of helping me apart from helping to sell my books and t-shirts on her end. To help her better understand my medical history … Continue reading →
If you are an NF2 doctor, I need your help
My surgeons at the House Clinic in Los Angeles and the National Institute of Neurological Disorder and Stroke in Maryland have not come to a conclusion as to what is causing the pressure I feel in my brain. As different … Continue reading →
The ambiguity continues
On Friday evening, my CT scans were zipped and sent to the surgeons via a free online file-sharing service. They reviewed it but did not see any tumors in my third ventricle like the Malaysian surgeon I saw said there … Continue reading →
My ebook is available on Amazon
Kia Kaha Press has published a digital version of my book, “I’m not sick, just a bit unwell – Life with Neurofibromatosis” which is available for download internationally from Amazon.com. To help me raise funds, Kia Kaha Press will be … Continue reading →
The likely culprits – Ventricular tumors
I went to see the neurosurgeon I met on Monday again to get clarification from him this evening. It turned out that I misunderstood him on Monday. What he meant was there are two tumors at my brain’s posterior fossa … Continue reading →
T-shirt and book availability for January 2012 surgery
Someone who wants to help me raise funds asked how many t-shirts and books I still have. So here is the list. You may help by gathering orders among your friends and purchase from me in a bulk too. Estimated … Continue reading →
Test of faith – RM80,000.00 in two weeks!
My neurosurgeon Dr. Gregory Lekovic at HEI replied my e-mail. He’s the doctor who implanted this VP shunt. He is going on holiday from 23rd December and will be back from vacation on January 8th. Since there are two weeks … Continue reading →
A detailed history of my VP shunt
December 2009 – A Trigone Meningioma was removed from the brain’s left lateral ventricle. The Contralateral Transcallosal approach was used to reach the tumor. Right field of vision was preserved with this surgical approach. Tumor was entirely removed. August 2010 … Continue reading →
Can I go back to my doctors?
NIH replied to my email in which I asked whether I could get my shunt fixed under the NF2 clinical research program protocol. They replied that they try their best to help every NF2 patient, but unfortunately, they cannot schedule … Continue reading →
My brain is flooding!
I’ve just come back from Assunta Hospital after doing a CT scan of the brain which was evaluated by a neurosurgeon and internist. The scan revealed that my VP shunt at the occipital horn is blocked! There is also blockage … Continue reading →
Everyone is getting ready to settle down
One of my ex-classmate is celebrating his 25th birthday next week. His girlfriend is organizing the party but the choices of restaurants are beyond my unemployment budget. Before I could suggest that we eat somewhere cheaper, another schoolmate came chatting … Continue reading →